{"id":338,"date":"2022-06-21T10:36:25","date_gmt":"2022-06-21T08:36:25","guid":{"rendered":"https:\/\/wasipope.cyon.site\/2022\/06\/21\/nationalrat-nimmt-zwei-motionen-zu-den-seltenen-krankheiten-an\/"},"modified":"2024-03-26T10:02:43","modified_gmt":"2024-03-26T09:02:43","slug":"le-conseil-national-adopte-deux-motions-sur-les-maladies-rares","status":"publish","type":"post","link":"https:\/\/ig-seltene-krankheiten.ch\/fr\/2022\/06\/21\/le-conseil-national-adopte-deux-motions-sur-les-maladies-rares\/","title":{"rendered":"Le Conseil national adopte deux motions sur les maladies rares"},"content":{"rendered":"<div id='layer_slider_1'  class='avia-layerslider main_color avia-shadow  avia-builder-el-0  el_before_av_submenu  avia-builder-el-first  container_wrap fullsize'  style='height: 236px; max-width: 1280px; margin: 0 auto;'  ><\/div>\n<div class='clear'><\/div><div id='sub_menu1'  class='av-submenu-container av-7iqp-c303ac7d9c65ba19eb2a8c0bf317f918 header_color av-switch-768  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class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">Actualit\u00e9s<\/span><span class=\"avia-menu-fx\"><span class=\"avia-arrow-wrap\"><span class=\"avia-arrow\"><\/span><\/span><\/span><\/a><\/li>\n<\/ul><\/div><\/div><div class='sticky_placeholder'><\/div><div id='after_submenu_1'  class='main_color av_default_container_wrap container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-338'><div class='entry-content-wrapper clearfix'>\n<div  class='flex_column av-6dzr-2da157fbbdf68d71b63f961e0b687a91 av_two_third  avia-builder-el-2  el_after_av_submenu  el_before_av_one_third  avia-builder-el-first  first flex_column_div  '     ><section  class='av_textblock_section av-lu2dwwa0-7d8be0a7a3511a01c6682a09b7578452 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h1>Le Conseil national adopte deux motions sur les maladies rares<\/h1>\n<\/div><\/section><br \/>\n<section  class='av_textblock_section av-lu2dycm8-7e2db860dd6144e7decdf7bd53da0898 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p class=\"intro\">Le 1er juin 2022, le Conseil national a adopt\u00e9 deux motions visant \u00e0 am\u00e9liorer la situation des personnes concern\u00e9es par les maladies rares. La motion 21.3978 \u00ab Financement durable de projets de sant\u00e9 publique du Concept national maladies rares \u00bb n&rsquo;a pas \u00e9t\u00e9 contest\u00e9e par la Grande Chambre ni par le Conseil f\u00e9d\u00e9ral. Comme le Conseil des Etats avait d\u00e9j\u00e0 approuv\u00e9 cette motion en d\u00e9cembre dernier, elle a \u00e9t\u00e9 d\u00e9finitivement adopt\u00e9e. Le mandat de mise en \u0153uvre est maintenant confi\u00e9 \u00e0 l&rsquo;Office f\u00e9d\u00e9ral de la sant\u00e9 publique (OFSP), qui \u00e9labore la r\u00e9glementation l\u00e9gale avec les parties prenantes concern\u00e9es.<\/p>\n<p>La deuxi\u00e8me motion \u00ab Renforcement et financement des organisations de patients dans le domaine des maladies rares \u00bb a \u00e9t\u00e9 adopt\u00e9e par la Grande Chambre par 130 voix contre 48 et 4 abstentions. Une minorit\u00e9 et le Conseil f\u00e9d\u00e9ral se sont oppos\u00e9s \u00e0 cette motion. La prochaine \u00e9tape sera l&rsquo;examen de la motion par la Commission de la s\u00e9curit\u00e9 sociale et de la sant\u00e9 publique du Conseil des Etats, les 6 et 7 septembre 2022.<\/p>\n<p>Durant la session d&rsquo;\u00e9t\u00e9, de nouvelles interventions ont \u00e9t\u00e9 d\u00e9pos\u00e9es dans le domaine des maladies rares.<\/p>\n<div class=\"links\">\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20213978\" target=\"_blank\" rel=\"noopener\">&gt; 21.3987 Motion CSSS-E \u00ab Financement durable de projets de sant\u00e9 publique du Concept national maladies rares \u00bb<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20223379\" target=\"_blank\" rel=\"noopener\">&gt; 22.3379 Motion CSSS-N \u00ab Renforcement et financement des organisations de patients dans le domaine des maladies rares \u00bb<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20223684\" target=\"_blank\" rel=\"noopener\">&gt; 22.3684 Interpellation Christian Lohr \u00abWas ist zu tun, damit neue, innovative Medikamente rasch und gleichberechtigt zu den Patientinnen gelangen?\u00bb<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20223608\" target=\"_blank\" rel=\"noopener\">&gt; 22.3608 Motion Damian M\u00fcller \u00abBetreuungsentsch\u00e4digung: Betreuung von schwer kranken Kindern im Spital gew\u00e4hrleisten und die L\u00fccke im Vollzug schliessen\u00bb<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227546\" target=\"_blank\" rel=\"noopener\">&gt; 22.7546 Question Christian Lohr \u00ab La Conf\u00e9d\u00e9ration va-t-elle am\u00e9liorer la rapidit\u00e9 et l\u2019\u00e9galit\u00e9 de l\u2019acc\u00e8s des patients aux m\u00e9dicaments innovants par la voie ordinaire ? \u00bb<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227493\" target=\"_blank\" rel=\"noopener\">&gt; 22.7493 Question Christian Lohr \u00ab Acc\u00e8s aux m\u00e9dicaments orphelins par la liste des sp\u00e9cialit\u00e9s \u00bb<\/a><\/p>\n<\/div><\/section><\/p><\/div><div  class='flex_column av-ar9-1a4d5bb6d47a5ed4abf22860e7d05501 av_one_third  avia-builder-el-5  el_after_av_two_third  avia-builder-el-last  flex_column_div  '     ><\/div><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Le 1er juin 2022, le Conseil national a adopt\u00e9 deux motions visant \u00e0 am\u00e9liorer la situation des personnes concern\u00e9es par les maladies rares. La motion 21.3978 \u00ab Financement durable de projets de sant\u00e9 publique du Concept national maladies rares \u00bb n&rsquo;a pas \u00e9t\u00e9 contest\u00e9e par la Grande Chambre ni par le Conseil f\u00e9d\u00e9ral. <\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-338","post","type-post","status-publish","format-standard","hentry","category-non-classifiee"],"_links":{"self":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/338","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/comments?post=338"}],"version-history":[{"count":1,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/338\/revisions"}],"predecessor-version":[{"id":339,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/338\/revisions\/339"}],"wp:attachment":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/media?parent=338"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/categories?post=338"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/tags?post=338"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}