{"id":341,"date":"2022-03-24T10:37:18","date_gmt":"2022-03-24T09:37:18","guid":{"rendered":"https:\/\/wasipope.cyon.site\/2022\/03\/24\/handlungsbedarf-bei-seltenen-krankheiten-in-parlamentarischer-fruhjahrssession-thematisiert\/"},"modified":"2024-03-26T10:04:47","modified_gmt":"2024-03-26T09:04:47","slug":"la-necessite-dagir-dans-le-domaine-des-maladies-rares-thematisee-lors-de-la-session-parlementaire-de-printemps","status":"publish","type":"post","link":"https:\/\/ig-seltene-krankheiten.ch\/fr\/2022\/03\/24\/la-necessite-dagir-dans-le-domaine-des-maladies-rares-thematisee-lors-de-la-session-parlementaire-de-printemps\/","title":{"rendered":"La n\u00e9cessit\u00e9 d&rsquo;agir dans le domaine des maladies rares th\u00e9matis\u00e9e lors de la session parlementaire de printemps"},"content":{"rendered":"<div id='layer_slider_1'  class='avia-layerslider main_color avia-shadow  avia-builder-el-0  el_before_av_submenu  avia-builder-el-first  container_wrap fullsize'  style='height: 236px; 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Dans son intervention, elle critique les processus mal coordonn\u00e9s de l&rsquo;autorisation de Swissmedic et du remboursement via la liste des sp\u00e9cialit\u00e9s (LS) et les retards qui en r\u00e9sultent pour l&rsquo;acc\u00e8s aux m\u00e9dicaments orphelins. En outre, la CN Feri fait remarquer que l&rsquo;augmentation du remboursement au cas par cas (71a-d OAMal) effectu\u00e9e faute d&rsquo;alternative dans le cas des m\u00e9dicaments orphelins compromet l&rsquo;\u00e9galit\u00e9 d&rsquo;acc\u00e8s des patients.<\/p>\n<p>Suite \u00e0 cette intervention, de nombreuses questions ont \u00e9t\u00e9 pos\u00e9es lors de l&rsquo;heure des questions du Conseil national.<\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20223101\" target=\"_blank\" rel=\"noopener\">&gt; 22.3101 Interpellation Yvonne Feri: Acc\u00e8s aux m\u00e9dicaments orphelins<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227187\" target=\"_blank\" rel=\"noopener\">&gt; 22.7187 Question Verena Herzog: Acc\u00e8s rapide aux nouveaux m\u00e9dicaments novateurs (1\/2)<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227188\" target=\"_blank\" rel=\"noopener\">&gt; 22.7187 Question Verena Herzog: Acc\u00e8s rapide aux nouveaux m\u00e9dicaments novateurs (2\/2)<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227209\" target=\"_blank\" rel=\"noopener\">&gt; 22.7209 Question Christian Lohr: Aide rapide pour les personnes atteintes de maladies rares<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227210\" target=\"_blank\" rel=\"noopener\">&gt; 22.7210 Question Christian Lohr: Acc\u00e8s aux m\u00e9dicaments orphelins<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227208\" target=\"_blank\" rel=\"noopener\">&gt; 22.7208 Question Christian Lohr: Mise en place d\u2019un case management assur\u00e9 par le personnel hospitalier pour les cas complexes de malformation cong\u00e9nitale. Les co\u00fbts seront-ils couverts par l\u2019AI ?<\/a><\/p>\n<p><a href=\"https:\/\/www.parlament.ch\/fr\/ratsbetrieb\/suche-curia-vista\/geschaeft?AffairId=20227194\" target=\"_blank\" rel=\"noopener\">&gt; 22.7194 Question Sandra Locher Benguerel: Cong\u00e9 de prise en charge. Dispose-t-on de premiers chiffres ?<\/a><\/p>\n<\/div><\/section><\/p><\/div><div  class='flex_column av-ar9-1a4d5bb6d47a5ed4abf22860e7d05501 av_one_third  avia-builder-el-5  el_after_av_two_third  avia-builder-el-last  flex_column_div  '     ><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La conseill\u00e8re nationale Yvonne Feri (PS\/AG) a d\u00e9pos\u00e9 une interpellation sur le th\u00e8me \u00ab\u00a0Acc\u00e8s aux m\u00e9dicaments orphelins\u00a0\u00bb. Dans son intervention, elle critique les processus mal coordonn\u00e9s de l&rsquo;autorisation de Swissmedic et du remboursement via la liste des sp\u00e9cialit\u00e9s (LS) et les retards qui en r\u00e9sultent pour l&rsquo;acc\u00e8s aux m\u00e9dicaments orphelins. <\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-341","post","type-post","status-publish","format-standard","hentry","category-non-classifiee"],"_links":{"self":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/341","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/comments?post=341"}],"version-history":[{"count":2,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/341\/revisions"}],"predecessor-version":[{"id":343,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/341\/revisions\/343"}],"wp:attachment":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/media?parent=341"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/categories?post=341"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/tags?post=341"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}