{"id":735,"date":"2025-04-15T15:22:14","date_gmt":"2025-04-15T13:22:14","guid":{"rendered":"https:\/\/ig-seltene-krankheiten.ch\/?p=735"},"modified":"2026-04-23T11:32:50","modified_gmt":"2026-04-23T09:32:50","slug":"rare-disease-day-2025","status":"publish","type":"post","link":"https:\/\/ig-seltene-krankheiten.ch\/fr\/2025\/04\/15\/rare-disease-day-2025\/","title":{"rendered":"Rare Disease Day 2025"},"content":{"rendered":"<div id='layer_slider_1'  class='avia-layerslider main_color avia-shadow  avia-builder-el-0  el_before_av_submenu  avia-builder-el-first  container_wrap fullsize'  style='height: 236px; max-width: 1280px; margin: 0 auto;'  ><\/div>\r\n\r\n<div class='clear'><\/div><div id='sub_menu1'  class='av-submenu-container av-7iqp-c303ac7d9c65ba19eb2a8c0bf317f918 header_color av-switch-768  avia-builder-el-1  el_after_av_layerslider  el_before_av_two_third  av-sticky-submenu submenu-not-first container_wrap fullsize' style='z-index:301' ><div class='container av-menu-mobile-active av-submenu-pos-center'><a href=\"#\" class=\"mobile_menu_toggle\" aria-hidden='true' data-av_icon='\ue8a5' data-av_iconfont='entypo-fontello'><span class=\"av-current-placeholder\">Menu<\/span><\/a><ul id=\"menu-hauptnavi\" class=\"av-subnav-menu\" role=\"menu\"><li role=\"menuitem\" id=\"menu-item-43\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-top-level menu-item-top-level-1\"><a href=\"https:\/\/ig-seltene-krankheiten.ch\/unsere-positionen\/\" itemprop=\"url\" tabindex=\"0\"><span class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">Notre Position<\/span><span class=\"avia-menu-fx\"><span class=\"avia-arrow-wrap\"><span class=\"avia-arrow\"><\/span><\/span><\/span><\/a><\/li>\n<li role=\"menuitem\" id=\"menu-item-42\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-top-level menu-item-top-level-2\"><a href=\"https:\/\/ig-seltene-krankheiten.ch\/ueber-uns\/\" itemprop=\"url\" tabindex=\"0\"><span class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">Qui sommes-nous<\/span><span class=\"avia-menu-fx\"><span class=\"avia-arrow-wrap\"><span class=\"avia-arrow\"><\/span><\/span><\/span><\/a><\/li>\n<li role=\"menuitem\" id=\"menu-item-41\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-top-level menu-item-top-level-3\"><a href=\"https:\/\/ig-seltene-krankheiten.ch\/seltene-krankheiten\/\" itemprop=\"url\" tabindex=\"0\"><span class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">Maladies rares<\/span><span class=\"avia-menu-fx\"><span class=\"avia-arrow-wrap\"><span class=\"avia-arrow\"><\/span><\/span><\/span><\/a>\n\n\n<ul class=\"sub-menu\">\n\t<li role=\"menuitem\" id=\"menu-item-40\" class=\"menu-item menu-item-type-post_type menu-item-object-page\"><a href=\"https:\/\/ig-seltene-krankheiten.ch\/herausforderungen\/\" itemprop=\"url\" tabindex=\"0\"><span class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">D\u00e9fis<\/span><\/a><\/li>\n<\/ul>\n<\/li>\n<li role=\"menuitem\" id=\"menu-item-39\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-top-level menu-item-top-level-4\"><a href=\"https:\/\/ig-seltene-krankheiten.ch\/parlamentarische-vorstoesse\/\" itemprop=\"url\" tabindex=\"0\"><span class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">Interventions parlementaires<\/span><span class=\"avia-menu-fx\"><span class=\"avia-arrow-wrap\"><span class=\"avia-arrow\"><\/span><\/span><\/span><\/a><\/li>\n<li role=\"menuitem\" id=\"menu-item-38\" class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-top-level menu-item-top-level-5\"><a href=\"https:\/\/ig-seltene-krankheiten.ch\/news\/\" itemprop=\"url\" tabindex=\"0\"><span class=\"avia-bullet\"><\/span><span class=\"avia-menu-text\">Actualit\u00e9s<\/span><span class=\"avia-menu-fx\"><span class=\"avia-arrow-wrap\"><span class=\"avia-arrow\"><\/span><\/span><\/span><\/a><\/li>\n<\/ul><\/div><\/div><div class='sticky_placeholder'><\/div><div id='after_submenu_1'  class='main_color av_default_container_wrap container_wrap fullsize'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-full alpha units'><div class='post-entry post-entry-type-page post-entry-735'><div class='entry-content-wrapper clearfix'>\r\n\r\n<div  class='flex_column av-6dzr-2da157fbbdf68d71b63f961e0b687a91 av_two_third  avia-builder-el-2  el_after_av_submenu  el_before_av_one_third  avia-builder-el-first  first flex_column_div  '     ><section  class='av_textblock_section av-lu2dwwa0-7d8be0a7a3511a01c6682a09b7578452 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><h1>Rare Disease Day 2025<\/h1>\n<\/div><\/section>\n<section  class='av_textblock_section av-lu2dycm8-7e2db860dd6144e7decdf7bd53da0898 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/BlogPosting\" itemprop=\"blogPost\" ><div class='avia_textblock'  itemprop=\"text\" ><p class=\"intro\">\u00a0Le 1er mars 2025, la 15e Journ\u00e9e des maladies rares a eu lieu \u00e0 l&rsquo;H\u00f4pital cantonal de Lucerne. L&rsquo;un des th\u00e8mes centraux \u00e9tait l&rsquo;implication des patient-e-s dans les soins. Le deuxi\u00e8me th\u00e8me abord\u00e9 a \u00e9t\u00e9 celui des maladies tr\u00e8s rares et des d\u00e9fis qu&rsquo;elles posent. Vous trouverez de plus amples informations ainsi que les pr\u00e9sentations et les photos de la Journ\u00e9e des maladies rares 2025 sur le site web de l\u2019\u00e9v\u00e9nement de ProRaris.<\/p>\n<p><a href=\"https:\/\/www.proraris.ch\/fr\/journee-maladies-rares-medecine-personnes-532.html\" target=\"_blank\" rel=\"noopener\">&gt; Site web de l\u2019 evenement ProRaris<\/a><\/p>\n<p><a href=\"https:\/\/ig-seltene-krankheiten.ch\/wp-content\/uploads\/2025\/04\/20250301_MEMO_RDD.pdf\">&gt; R\u00e9sum\u00e9 RDD 2025 de la CI Maladies rares (en allemand) (PDF)<\/a><\/p>\n<\/div><\/section><\/div><div  class='flex_column av-ar9-1a4d5bb6d47a5ed4abf22860e7d05501 av_one_third  avia-builder-el-5  el_after_av_two_third  avia-builder-el-last  flex_column_div  '     ><\/div><!-- \/wp:post-content -->","protected":false},"excerpt":{"rendered":"<p>Die j\u00e4hrliche Tagung von ProRaris zum Rare Disease Day fand dieses Jahr am 1. M\u00e4rz 2025 in Luzern statt. Zentrales Thema war der Einbezug von Patientinnen und Patienten in die Versorgung. Als Zweitthema waren sehr seltene Krankheiten diskutiert.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-735","post","type-post","status-publish","format-standard","hentry","category-non-classifiee"],"_links":{"self":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/735","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/comments?post=735"}],"version-history":[{"count":3,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/735\/revisions"}],"predecessor-version":[{"id":737,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/posts\/735\/revisions\/737"}],"wp:attachment":[{"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/media?parent=735"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/categories?post=735"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ig-seltene-krankheiten.ch\/fr\/wp-json\/wp\/v2\/tags?post=735"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}